The hours can seem long in a dialysis center. Bringing something to do will keep you from being bored and keep your mind busy. Take these ideas and use them. Some will fit you and some will not.
Kindle/Laptop/ or other Device: Download, games and books to the Kindle. Spend your time enlightening your mind or playing games for fun.***
Read. Bring a book or use your Kindle to download books. When I read time slips by quickly.
Journal. All you need is a pencil and pen and a notebook; or use your computer. Write your memoirs while you sit in the chair for hours. Write that book that has been in your head for many years.
Puzzles. Soduko, word searches, thinking puzzles books will help keep your mind sharp. Buy them at your local 99 cent stores.
Podcasts. You can download most onto your kindle or find them online. I like:
The Thrilling Adventure Hour– comedy, old fashioned variety show.
Wolf 359- science fiction story.
Do It Scared– uplifting talk and advice.
Find ones you like or try a random podcast.
Draw. Drawing equipment is a small clipboard, paper, a pencil, eraser, and colored pencils or crayons.
Color. Buy an adult coloring book. Get a set of colored pencils. Take your time coloring a page.
Crochet or Knit. The yarn can be in a plastic container with a small hole in the lid with the yarn poked up through to the crochet hook or knitting needles You can knit and crochet with little space. Everything is in the container to and from the center
Picnic. If your center lets you eat while on the machine, bring a picnic lunch with food you like. Pack them in a picnic basket or lunch bag along with a large napkin and a checked tablecloth. Put the tablecloth over your lap and have a picnic. **
Meditate. Relax your mind. Turn off from your worries.
Sleep. Let your body rest. A lot of dialysis patients sleep during dialysis.
** Clean up after yourself after each dialysis center. Make sure your materials all are in their containers and trash is picked up before you leave.
***Be courteous to those around you turn the volume down on your devices when using them.
***Remember to bring a power cord or charger and cords for your devices.
*****Actually there are eleven things on the list but sleep does not activate the mind, although it can help it to rest and relax.
I dialyze to live. I don’t live to dialyze. Katherine E. Soto
As you all know I dally around in art. Usually I make a big mess and then poof it come out into something I like. Here is what I created today with paint and markers.
I turned it into a birthday card. It says: A birthday Butterfly! Winging Birthday wishes to you!
I wrote a meditation piece a few days after I was out of my last hospital visit. It speaks of things on my mind at the time.
What I did not know how it was easy to lose a day.
My brain when it’s overloaded
with toxins gets ill and it loses time.
It’s scary to me.
I sat and told a nurse at the hospital I was going home
Even removed an IV in my panic.
I have learned that hospital psychosis is real.
If I am not checked on periodically,
I will lose time.
I will have conversations with non- existent people
And have conversation not remembered.
who tell me what I want to hear.
It feels like my brain is different again.
Typing is difficult for me.
My fingers feel the keys have been moved on them.
It gets better with time.
Things are hard.
I have a few travel plans on my bucket list. For those of you who have no idea what a bucket list is, it is a list of things you want to accomplish or do before you end up as Stardust in the Universe once again. I have a list I keep in my head of places want to go. It takes time and effort to travel while I am a dialysis patient?
Where do I want to go?
Washington D.C. is a big one on my list. I love the history of our nation so the monuments and Smithsonian Museums would be outrageously fun to visit. I could get my history geek on at the monuments and historical sites. Then the science buff and more history interest, plus the artistic side of me would come out in the museums.
The place I have wanted to since fourth grade is the continent/country of Australia. In spite of the flat world people declaring Australia a hoax recently, I still want to go visit it. Steve Irwin’s Zoo, Urulu Rock, a real live operating sheep station, the Sydney opera house, the great barrier reef, and the outback are a few of the things I want to see. I love the idea of Australia. I headed tomorrow to see the outback area at the San Diego Safari Park- a new part of the park. I have to save a lot of money to do this trip.
How do I travel while on dialysis?
I have to make plans early and share them with the travel coordinators in my center and the company. I tell the travel coordinator where I plan to go and my dates and answer all of their questions about my dialysis. I also tell them I am easy about scheduling unless I have planned something for a certain date. Usually my vacations are loosely tied around the dialysis days and times so I need to know those to make plans. Usually they do not tell me my days so I loosely plan things around the days I asked for. Usually there are small problems, like not getting the information to me at the center level. I call the travel planners at the company level frequently to make sure my request has been seen.
So you have been on dialysis for twenty years, prove you’ve traveled.
I have traveled and what I mean by traveled a week or more to these various place: Oceanside, CA twice, Pismo Beach,CA once, Palm Springs,CA 3 times, Indio,CA once, Clearlake, CA once, Windsor, CA once, San Diego, CA three times, Bellevue, WA once, Tucson, AZ twice, Milwaukee,WI, twice, Oklahoma City, OK three times, Williamsburg, VA once, Lake Tahoe, NV twice, Las Vegas, NV, three times, Hawaii twice and other places I cannot think of right this minute. I have had dialysis treatments in everyone of these places. I find dialysis centers are the same for the most part. Safety precautions are the same. Some techs listen when you explain your preferences, some don’t. Nurses will give meds as needed.
Advice for those traveling while on dialysis?
Your prescription needs to be accurate coming from your home center. Bring what you need to survive a dialysis treatment-your nesting materials. Make your plans early and get them in at least a month or month and a half to your center and to the dialysis company travel people. Have firm dates for your travel. Be flexible in your dialysis schedule while traveling. Tell the new place what your needs are nicely.
Go and have fun!
Remember Dialyze to Live, Don’t Live to Dialyze!
Someone I love has AlS. Please support finding a cure.
I am making an art journal this weekend and thought I would take you all through my process as I create it. I have discovered that if I am creative in an art journal at least once a week I feel better inside my own head.
This piece I started by taping two pieces of art paper together to make them into a larger piece. I used two pieces of yellow colored paper as my base.
Then I took my acrylic paints and put dots all over the pages in all sort of colors.
I pressed the pages together to make a paint collage all over both pages. I took a plastic card and dragged it on the outside of the pages to help set the paint together.
I have a conglomeration of different colored paint on both pages. Check the pictures out.
Next I need to pick a topic for this art journal page.
I used a black marker to make faces out of the paint on my paper today. They are big ugly faces looking to the side of the pages. I colored in the eye pupil black.
I added black and white tape to the edges.
It has turned into an abstract piece named Faces.
There have been a few changes to this blog lately. I have removed and combined several categories. I moved posts around into new categories. I am also trying to clarify what topics I will be writing about in this blog in order to clarify it for myself and for my readers.
The writing that I placed on this blog will stay here, in the meantime my recent writing and updates on it are on my writer’s site: http://katherineesoto-author.com/ If you want to keep up with my writing, please see this site. The writing that is on this blog will be static for the most part. I am adding to my author site as a priority, so when my novel is ready my bog is ready, too.
On lIfeonthelist.com I plan to write about 4 things:
Art and art Journaling- mainly my adventures into the world of art. Art I find is interesting, pieces that are interesting, plus my own art piece I create.
Lifestyle- My life and things I find interesting.
Dialysis- I am practicing writing dialysis articles here and slowly gearing up to write my nonfiction book about dialysis.
Travel- Place I go, places I want to go, research on places around the world, other people’s ideas and places they have gone.
I think I can find a lot of things to blog about on these four topics plus keep this blog interesting.
Please fell free to make suggestions and comments when you visit.
1st- Just me playing with paint and tissue paper. The 2nd is an art prompt that asked me to find inspiration in an art piece.