Thoughts on Things

(Written in 2016. I think it still applies.)

I have waited a few weeks to get my mind around the stuff I see posted on Social Media so here goes. We live in a connected world, instant messaging, computer screens on our dining tables, computers in our phones, we can call anyone anywhere and take a video while we do it. While we have become more connected we have allowed ourselves to become less connected with one another. We talk and communicate to the technology, not each other.

We see opportunity to take one another to task for behavior that has been around a long, long time and has not been corrected. We argue to make our own points and rarely listen to one another’s real words and meanings. The meanness and bad attitudes we see get put into videos daily and then are posted to social media for over half the world to see. Things go viral whether they really deserve our time.

I think young children get along with each other until they reach the age where they are exposed to our world through their parents’ attitudes and the social media. More and more we are allowing social media to speak our loud mouths. Discrimination has been around a long, long time. We are all immigrants through relatives way back in America. As each set of immigrants made its ways to the US it too was discriminated against. Even back to the Mayflower and Colonial times,people were sent to the colonies to get rid of trouble makers and here we are many years later still dealing with trouble makers of our own.

When we learn to speak with our hearts and think with our minds before saying or doing anything, then we shall become smarter, kinder and more creative beings.

21st Dialysisversary!

My Going to Dialysis is now old enough to drink in the state of California.

Kortnee Greenfield courtesy Unsplash

21 years of 3 days a week dialysis.

21 years, 3 days a week Let’s see 52 weeks in a year

52*3=156 days of dialysis in a year.

156 times 21 years =3276 days of dialysis in my life.

2 needles in my arm is double 3276 and

we get 7552 size 15 to 16 needles in my arm.

I need a cake to celebrate! I have gone to every dialysis treatment I had to go to over twenty years. Every damn one of them!

Here’s to Life Not on the List! Here’s to me! 21 Again!

alexandra-gornago-_B7shfNUXEA-unsplash

My Favorite Reading Space

I usually read before I go to sleep in bed. 

However, my all-time favorite reading space is

on a comfortable chair or couch

wrapped up in a warm blanket,

pillows surrounding my head like pillows.

Slippers might be on my socks

Keeping my feet toasty warm.

Getting ready to read.

 A cup of hot cocoa awaits me

when from time to time

 I remember to turn

from my reading to drink from it.

There might be a small plate of cookies near that cocoa

For me to munch on as I read my book.

or a cup of hot soup Is brought with crackers,

because too wrapped up in reading

I forgot about eating lunch.

Reading suggestions:

Happy for No Reason by Marci Shimoff

Sword of TruthWizard’s First Rule by Terry Goodkind

#TheTearCollector is out for Preorder. Book comes out December 2, 2019. #writeaskew

Renee Fisher and Co Interview

I was interviewed by Renee Fisher on her Facebook site and Zoom about writing with a Chronic Illness on Thursday, October 24, 2019. It was great interview and we reached many people.

From Renee Fisher and CO

From Renee FIsher and Co. Renee said: I wanted to thank Katherine Soto once again for talking about Writing with Chronic Illness yesterday with us! My favorite quote from the call was “I’m going to do something worthwhile.” Like Katherine said, “Every day we can make the choice to get out of bed and write one word. One sentence. One page. One…”Today, if all you have the energy or strength to do is get out of bed—you’re not alone! May this be a community where y’all feel welcome no matter what you’re struggling with.Leave a comment and let us know how we can be praying for one another!— with Katherine Soto.

From me: I wanted to say thank you to everyone who attended and watched the replay. Thanks Renee for an informative and interesting interview. You can get a hold of me through Facebook.  Other links I mentioned were ihatedialysis.com –
facebook and forums, nadiacolburm.com for meditative writing. Remember you are the work in progress not your chronic illness.

I thoroughly enjoyed doing this interview.

Putting Happiness into Your Life

When you have a chronic illness it is difficult sometimes to be happy. I think we tend to sink into the negative aspects of our illness and forget that we can be creatures of happiness in spite of a chronic illness.

Marci Shimoff author of Happy for No Reason and Love for No Reason spoke in the webinar Extraordinary Life after 40 Summit on happiness.  She said she was always unhappy even when she was on tour for her book on happiness.  She learned that everyone has a happiness set point: 10% circumstances, 40 % Habits, 50 % genes.  You can change 50 % of it through what you do in circumstances and your habits.  A change in habits can also influence your DNA. 

Changing your habits help your bodies response to negativity.  Most people respond to negativity.  It’s what we remember most about our day.  Changing this through a simple action can help. 

Write down 5 happy things from your day.  

Velcro the positive into your day, Teflon the negative. 

Three steps for helping reset your happiness point

  1. Look for the positive in your day.
  2. Savor the positive for at least 20 seconds.
  3. When your have a negative thought, make sure to have three positive thoughts, too

Become a creature of happiness.

Find your happiness.

I Treated Myself to a New Medical Alert ID Necklace

The first medical bracelets offered to me as a patient when I younger were ugly, so I never considered getting one; although I did know it was important to have one due to my medical conditions. One day I received an email asking me to look at an article about medical ID bracelets. Designs for women and men had changed in medical IDs. I saw many new designs that I would like to have.

Medical ID Bracelets are the first defense for patients to let paramedics and ER people know important information about their health. Sometimes a patient is unable to communicate with the health personnel and a custom-engraved ID bracelet or necklace can speak for them. Right now, there are so many options and ways to purchase medical alert jewelry.

There are the bracelet and chain that everyone has seen since the 1970s as medical ID bracelets. There are new designs out now that wearers can match with their style or clothing. Several offer pendants on necklaces for either men or women to wear. There are a lot of beautiful designs to choose from

This time, I chose this necklace from a brand called American Medical ID https://www.americanmedical-id.com their website came up first when I looked up search results. It’s a 10K gold-filled oval tag embossed medical ID necklace. I like the subtle look and think it’s really elegant. It’s not as big as the traditional medical ID tags. The medical emblem is embossed but still easily recognizable.

The new pendant necklace (front)

Now onto the engraving. My new medical ID necklace can be engraved on the back side of the pendant or tag. It can actually hold up to 5 lines of medical information. A lot of people are asking what to engrave, you can check this helpful engraving guide first.

The new pendant necklace (back) (Phone number has been removed for privacy)

I used all 5 lines for the engraving since the company offers unlimited engraving for just $7. I included these details:

1. My Name

2. Dialysis

3. No Use Left Arm

4. Ostomy

5. My In Case of Emergency Contact (This has been removed for privacy reasons in this picture)

Your engraving can be different from mine. Your doctor can also help identify the most critical information to engrave on your ID too.I agree with paramedics and ER professionals that a medical ID would be helpful in a time of need and I am unable to communicate with them. A medical ID is recommended to anyone with a medical condition. You can look at the website I provided to choose a medical ID that you’ll prefer.  

5 Things to Do to Feel Better on Dialysis

  1. Watch your fluid intake.  Keep track of the weight you gain on week days and on weekends.  Once you get a few weeks data, look at it.  What is your average gain?   Then track your fluid intake for a week or two.  Are you taking in too much?  Can you change it?  Fluid is such an important part of dialysis.  The taking off of fluid is one of the main things people complain about.

2. Eat well. Be sure your diet has all kinds of foods in it., Keep on eye on the kidney diet recommended by your dietitian.

3. Come to dialysis prepared to nest for four hours.  Make sure you are wearing comfortable clothes.  Be sure you have something to do.  Bring things that make you comfortable for those hours in the chair.

4. Sleep. Get rest and sleep as needed.  If you feel tired during the day, take a nap if you can.  Sleep those 8 hours a night recommended.  If you have insomnia, ask your doctor what you can take.  Use meditation or calming tea to soothe you to fall asleep.  Turn off the electronics a half an hour before going to bed. 

5. Attitude.  Dialysis is tough.  It is one of the hardest things to do.  It is day in and day out a grind every week.  The techs and nurses know it is.  They want to know how you are doing.  Bring your health problems to them.  Tell them what is going on, so they can help you.  If you have a good attitude towards your treatment times, you will be much happier. Remember- You can hate dialysis all you want.

A few places to go for help:

       I hatedialysis.com forums and Facebook page

       Dialysis Discussion Uncensored Facebook page

       DaVita.com- major dialysis corporation

       Fresenius.com- major dialysis corporation

I have a Facebook group for lifenotonthelist.com.  It is for long term dialysis patients.  Please visit.  It is new.

Remember: Dialyze to Live, don’t Live to Dialyze!

A Done List

I learned this week from Noom is if you feel overwhelmed by your To Do list, sit down and think of all the things you have done and make a DONE list. List all of things you did today or yesterday or this week. They asked for a list of ten things. Ten things on your list leaves you feeling good at your successes.

Here is my list from a few days ago.

“DONE” List

  1. I went to my dialysis treatments all three days.
  2. I stayed my entire 6 hour treatment time.
  3. I cooked three good meals this week.
  4. I gave up eating French Fries during lunch.
  5. I have added more green foods into my diet.
  6. I made a list of all the red foods I have been eating.
  7. I went to bed a little earlier each night.
  8. I did laundry this morning.  (Remind me to get clothes out of the dryer.)
  9. I have written on my second novel this week.
  10. I talked to a friend over the phone for an hour.

Do this every now and then to give yourself a good pick me up!

Recent Art Pieces

I have been working on art pieces. I thought I would share three recent ones. The first two are layering practice pieces. The third is a design Rhino. Eventually I will color the design rhino.

1st layering art project
Second layering art project
Design Rhino ready to be colored

Working on art work and writing help me to not think about my aches and pains.