Thoughts on Things

(Written in 2016. I think it still applies.)

I have waited a few weeks to get my mind around the stuff I see posted on Social Media so here goes. We live in a connected world, instant messaging, computer screens on our dining tables, computers in our phones, we can call anyone anywhere and take a video while we do it. While we have become more connected we have allowed ourselves to become less connected with one another. We talk and communicate to the technology, not each other.

We see opportunity to take one another to task for behavior that has been around a long, long time and has not been corrected. We argue to make our own points and rarely listen to one another’s real words and meanings. The meanness and bad attitudes we see get put into videos daily and then are posted to social media for over half the world to see. Things go viral whether they really deserve our time.

I think young children get along with each other until they reach the age where they are exposed to our world through their parents’ attitudes and the social media. More and more we are allowing social media to speak our loud mouths. Discrimination has been around a long, long time. We are all immigrants through relatives way back in America. As each set of immigrants made its ways to the US it too was discriminated against. Even back to the Mayflower and Colonial times,people were sent to the colonies to get rid of trouble makers and here we are many years later still dealing with trouble makers of our own.

When we learn to speak with our hearts and think with our minds before saying or doing anything, then we shall become smarter, kinder and more creative beings.

21st Dialysisversary!

My Going to Dialysis is now old enough to drink in the state of California.

Kortnee Greenfield courtesy Unsplash

21 years of 3 days a week dialysis.

21 years, 3 days a week Let’s see 52 weeks in a year

52*3=156 days of dialysis in a year.

156 times 21 years =3276 days of dialysis in my life.

2 needles in my arm is double 3276 and

we get 7552 size 15 to 16 needles in my arm.

I need a cake to celebrate! I have gone to every dialysis treatment I had to go to over twenty years. Every damn one of them!

Here’s to Life Not on the List! Here’s to me! 21 Again!

alexandra-gornago-_B7shfNUXEA-unsplash

My Favorite Reading Space

I usually read before I go to sleep in bed. 

However, my all-time favorite reading space is

on a comfortable chair or couch

wrapped up in a warm blanket,

pillows surrounding my head like pillows.

Slippers might be on my socks

Keeping my feet toasty warm.

Getting ready to read.

 A cup of hot cocoa awaits me

when from time to time

 I remember to turn

from my reading to drink from it.

There might be a small plate of cookies near that cocoa

For me to munch on as I read my book.

or a cup of hot soup Is brought with crackers,

because too wrapped up in reading

I forgot about eating lunch.

Reading suggestions:

Happy for No Reason by Marci Shimoff

Sword of TruthWizard’s First Rule by Terry Goodkind

#TheTearCollector is out for Preorder. Book comes out December 2, 2019. #writeaskew

Putting Happiness into Your Life

When you have a chronic illness it is difficult sometimes to be happy. I think we tend to sink into the negative aspects of our illness and forget that we can be creatures of happiness in spite of a chronic illness.

Marci Shimoff author of Happy for No Reason and Love for No Reason spoke in the webinar Extraordinary Life after 40 Summit on happiness.  She said she was always unhappy even when she was on tour for her book on happiness.  She learned that everyone has a happiness set point: 10% circumstances, 40 % Habits, 50 % genes.  You can change 50 % of it through what you do in circumstances and your habits.  A change in habits can also influence your DNA. 

Changing your habits help your bodies response to negativity.  Most people respond to negativity.  It’s what we remember most about our day.  Changing this through a simple action can help. 

Write down 5 happy things from your day.  

Velcro the positive into your day, Teflon the negative. 

Three steps for helping reset your happiness point

  1. Look for the positive in your day.
  2. Savor the positive for at least 20 seconds.
  3. When your have a negative thought, make sure to have three positive thoughts, too

Become a creature of happiness.

Find your happiness.

I Treated Myself to a New Medical Alert ID Necklace

The first medical bracelets offered to me as a patient when I younger were ugly, so I never considered getting one; although I did know it was important to have one due to my medical conditions. One day I received an email asking me to look at an article about medical ID bracelets. Designs for women and men had changed in medical IDs. I saw many new designs that I would like to have.

Medical ID Bracelets are the first defense for patients to let paramedics and ER people know important information about their health. Sometimes a patient is unable to communicate with the health personnel and a custom-engraved ID bracelet or necklace can speak for them. Right now, there are so many options and ways to purchase medical alert jewelry.

There are the bracelet and chain that everyone has seen since the 1970s as medical ID bracelets. There are new designs out now that wearers can match with their style or clothing. Several offer pendants on necklaces for either men or women to wear. There are a lot of beautiful designs to choose from

This time, I chose this necklace from a brand called American Medical ID https://www.americanmedical-id.com their website came up first when I looked up search results. It’s a 10K gold-filled oval tag embossed medical ID necklace. I like the subtle look and think it’s really elegant. It’s not as big as the traditional medical ID tags. The medical emblem is embossed but still easily recognizable.

The new pendant necklace (front)

Now onto the engraving. My new medical ID necklace can be engraved on the back side of the pendant or tag. It can actually hold up to 5 lines of medical information. A lot of people are asking what to engrave, you can check this helpful engraving guide first.

The new pendant necklace (back) (Phone number has been removed for privacy)

I used all 5 lines for the engraving since the company offers unlimited engraving for just $7. I included these details:

1. My Name

2. Dialysis

3. No Use Left Arm

4. Ostomy

5. My In Case of Emergency Contact (This has been removed for privacy reasons in this picture)

Your engraving can be different from mine. Your doctor can also help identify the most critical information to engrave on your ID too.I agree with paramedics and ER professionals that a medical ID would be helpful in a time of need and I am unable to communicate with them. A medical ID is recommended to anyone with a medical condition. You can look at the website I provided to choose a medical ID that you’ll prefer.  

A Done List

I learned this week from Noom is if you feel overwhelmed by your To Do list, sit down and think of all the things you have done and make a DONE list. List all of things you did today or yesterday or this week. They asked for a list of ten things. Ten things on your list leaves you feeling good at your successes.

Here is my list from a few days ago.

“DONE” List

  1. I went to my dialysis treatments all three days.
  2. I stayed my entire 6 hour treatment time.
  3. I cooked three good meals this week.
  4. I gave up eating French Fries during lunch.
  5. I have added more green foods into my diet.
  6. I made a list of all the red foods I have been eating.
  7. I went to bed a little earlier each night.
  8. I did laundry this morning.  (Remind me to get clothes out of the dryer.)
  9. I have written on my second novel this week.
  10. I talked to a friend over the phone for an hour.

Do this every now and then to give yourself a good pick me up!

Pain

I was reading an article that said to start your day with a positive attitude. I agree and have been trying this since January. For a while my mind was “No!” “Don’t want to get up.” “No.” I had to change it to “I am awake.” to getting up with a “Yes” attitude. I would say I have been positive getting up about half the time since January.

Pain is a large part of the negative attitude towards waking up. It hurts to move when I get up. It affects the brain and the way I react. I understand why people with chronic illness with pain sleep a lot. I have decided to try three things each morning.

  1. Put pain relieving cream on the sore spots.
  2. According to how I feel after that, take pain meds.
  3. Move around a little. Stretch a little to get the blood moving.

I hope this new routine will help the pain and help me to have a more positive attitude.

I do manage to lose myself in my writing and art work during the day. The pain is kept at bay as long as I am working on something. When I finish working, I am hit with pain. I take a heavy duty pain killer. Even then, it is not gone all the way.

Due to being on dialysis the options for pain meds are limited. I tried CBD oil. It did nothing for me. The roll on pain reliever helped a little when rubbed on the skin.

It is an interesting way to live. I am trying to do things and keep moving. It’s hard.

An article to read from The Mighty.

Why is lifenotonthelist.com here?

Another list I am not on.
Another list I am not on.

Lifenotonthelist.com is my answer to the doctors who told me I could not be put on the kidney transplant list do to a medical issue. I decided to make my life the best one I could as a permanent dialysis patient.

It is not an easy life with dialysis three days a week for six hours each treatment. Low blood pressure has become my fight at dialysis. Hospital stays that are becoming longer and more frequent. Recovery that takes longer after being knocked flat. All over body pain and sciatica hip pain all day.

How do I deal with it? I write things down here in the blog to encourage other dialysis patients. I write article for other people to use and publish. I write poetry. I make art projects. I paint , color, use markers and take classes. I meditate when I can. I write. I wrote a novel this year and am halfway through my second novel. I am waiting for creative editing from my publisher. My life takes a turn to being a writer.

What is in the future? My novel published. A poetry book put together and entered into contests. My second novel taken through creative editing. A book of dialysis articles written, collected and published. This blog to grow and keep going.

I will keep dialyzing to live, not living to dialyze!

Updated Blog and Changes 4/25/2019

There have been a few changes to this blog lately.  I have removed and combined several categories.  I moved posts around into new categories.  I am also trying to clarify what topics I will be writing about in this blog in order to clarify it for myself and for my readers. 

The writing that I placed on this blog will stay here, in the meantime my recent writing and updates on it are on my writer’s site: http://katherineesoto-author.com/     If you want to keep up with my writing, please see this site.  The writing that is on this blog will be static for the most part. I am adding to my author site as a priority, so when my novel is ready my bog is ready, too.

On lIfeonthelist.com I plan to write about 4 things:

Art and art Journaling- mainly my adventures into the world of art.  Art I find is interesting, pieces that are interesting, plus my own art piece I create.

Lifestyle- My life and things I find interesting.

Dialysis- I am practicing writing dialysis articles here and slowly gearing up to write my nonfiction book about dialysis.

Travel- Place I go, places I want to go, research on places around the world, other people’s ideas and places they have gone. 

I think I can find a lot of things to blog about on these four topics plus keep this blog interesting.

Please fell free to make suggestions and comments when you visit.