Ihatedialysis.com Tenth Annual Reunion 2011

I flew into Vegas on the 3rd and flew out on the 10th. Such an easy way to get to Vegas for 88 dollars each way.  I stayed at the Worldmark condo on Spencer Street from October 3-10. I shared the condo with Aleta L. It is a small condo section hidden back behind shopping areas about a mile behind the Silver Sevens Resort down Flamingo.  It was a small two-bedroom condo; however, it had enough room for what we needed to do.

Danielle and Dave brought Violet up with them and stayed a night with us and went to the IHD.com dinner, too.  Violet loved the pots and pans in the cupboards and pulled them out all over the place.  She was also given a small bag of potato chips that were promptly tossed all over the floor and mashed into crumbs.  She had loads of fun playing with the condo stuff.  Violet decided she knew Aleta L.  We think she thought she was our friend Marilyn.  They look a lot alike.  When Aleta picked her up into her lap, Violet got the shy look on her face, that said “Oops I do not know you.” But most kids like Aleta so it was okay.

The Tenth annual reunion of ihatedialysis.com happened over the weekend of October 6-7, 2017.  Members of the IHD.com forums and Facebook met and talked and ate and partied around Las Vegas.The Meet and Greet for members was on Friday night at kitkatz’ condo.  We talked and introduced ourselves and met new people.  Dinner was organized by the Admin Kitkatz. Dinner was on Saturday night at Buca Di Beppo on Flamingo Ave.  Huge portions, good food, and great people. DarthVadar- Carolyn- had a brownie ice cream dessert that was shared around the table.  It was huge!

The Admins of Ihatedialysis.com gave the members who attended a few mementoes of the occasion: A tote bag, a necklace of a kidney in a heart for the women, a keychain with kidney in a heart for the men, a dog tag chain with Tenth Annual Reunion on it, 5 ihatedialysis.com green ribbon pencils.  Darthvadar-Carolyn-brought packets of items from Ireland to share with the members. There was a postcard, magnet, pen, keychain, suckers, buttons, and shortbread cookies. A Tennessee T-shirt was from Aleta. A small notebook was from Del.

Overall the reunion was a success.  Next year is already being planned.

Mother Said…

Mother said to come in out of the rain.

Mother said to not look at the boys.

Mother said to not touch the iron or the stove

Mother said to sit like a lady

Mother said to leave well enough alone.

Mother said that life would be hard.

Mother said a lot of stuff she did not mean.


I say stand in the rain and enjoy it.

Watch the puddles pile up

At your feet and splash in them.

I say that men are fine looking

And should be admired.

I say be careful of hot stuff

You may get burned.

I say sit any way you want

When you are wearing pants.

I say explore, see, do, become.

I say enjoy life as it comes

It can be challenging.

I say things that are to be said

The truth.

2018 Positive About It

So the new year s has had an interesting start to it.

The news is such a downer these days and people seem to want to ride the negativity wagon with it.  I am trying to help change the world.

I said I was going to have a positive thinking year.  I said it out loud to a friend of mine because when you make a resolution or plan you should say it out loud.  I said I was going to be more positive about things this year. Instead of people standing so close to me in the supermarket at the ATM, I am positive they bothered me.  Much laughter.

Well life is testing me. My access for dialysis went down the 5th of January.  Of course a declot was done and  I am positive that doctor had no idea he was torturing me when he failed to declot and fix it the first time.  A catheter was placed the next day and a month later I had the fistula ballooned so it works now.  I am positive that 1st doctor will not touch me again.

So here it February, almost Valentine’s Day.  I am positive from my chocolate people who sent me Christmas chocolate, I do not need Valentine’s chocolate. However I am pretty positive Walgreens will see me February 15th for their sale candy.

I spent money today like I have money to spend.  Sushi lunch at Miyagi’s, a Kay jewelers visit for customer appreciation day event,  (My Visa card was appreciated), an order to Melaleuca.com for laundry detergent, and a few Amazon.com purchases.  Visa loves me today.  I spent over what I paid them as a payment this month!  I am positive I have some gifts for the year covered. So now to watch for Amazon orders and Meleauca order to come to the door.

So these are my first months of 2018.

I am going trying to keep it positive.

Update-Dialysis January 2017

My fistula clotted on a Sunday morning early, early. Since I had to wait to Monday morning, I had quite along wait to contact vascular surgery. I was in misery the entire time the radiologist tried to declot my fistula. They could not get an IV in so the doctor was giving me meds into the fistula area and it was just carrying away. It had me up over my pain threshold. I was crying and screaming for him to stop torturing me four hours into it all. Tuesday morning I was invited back to get a chest catheter. Basically I am all right. I ache all the time in my shoulder due to the bleed the doctor caused trying to declot the fistula, plus the catheter being almost on top of it. I am also chronically cold now all the time.

Update February 1

Things are better. I am feeling better.  I have an appointment for vein study and ballooning on Feb 6th.  This time real meds will be given tome, I hope.

Update Feb 6, 2018

They managed to give me enough meds to balloon the area under my arm that was causing problems in my fistula.


Anger, deep down soul boing anger
Deep dark places exist within the soul
Bubble up now and then to remind
You do not live alone in the world.
Interactions with other people
Feelings, rumblings, grumblings
All are a part of a life lived in the world.

Deep down soul eating anger is within me.
It eats me into depression.
Knowing this monster that lives within.
It acts like fire, eating away at things.
Springing up into thoughts.
Curling and burning the edges of life.
Allowing the singeing of the corners of life.
It is like an old growth forest,
Sometimes it needs to burn to help the regrowth begin.
Stand and watch the fire burn
to begin to gain some control.
To bring it back into the soul and acknowledge it.

By K. Soto 2017

My Holiday Trip to Oklahoma (Pics are on Facebook)

December 21st

I left Ontario around 1 am and flew into Dallas into a cold morning around 5 am.  Maria and Alex picked me up from the airport.  We went over to our hotel hoping we could check in early and rest and relax for a few hours before hitting the museum.  They valeted the car and let us check into the hotel.  We had a large suite with a sitting area separated from the bedroom area by ¼ wall.  We discovered my scooter had been delivered early, so after breakfast and relaxing for a few hours we headed over to the Perot Museum.  It was about two blocks from our hotel.

Perot Science Museum- This museum is a wonderful place to explore. I think another day would have seen it all.  They had a special exhibit called Journey into Space.  This exhibit had all kinds of things about traveling into space and the possibility of going to Mars.  There was a mock up of the space station that you could stand in and it revolved around you like it does the astronauts in space.  It was quite the experience watching it go around you while you stood still.  Maria and I took the glass enclosed escalator to the fourth floor.  Mr fear of heights took another beating doing it.  Once you ar eont he escalator there is no turning back so you have to go all the way up on it.  They have an area you can stand in the overlook the downtown area.  It is glassed in and it scared the heck out of me. I held onto a pillar and Maria’s hand to get out of the enclosed area on top.  This museum is a place to explore over and over again.

We then went to lunch at a place called Meso Maya.  Advertises as local real Mexican food.  It was different,  It tasted pretty good.  We ate and returned to our hotel to rest and relax.  Pizza was for dinner.  The ratfinks I travel with ordered a pizza with zucchini on it.  I hate zucchini.  I also surprised Maria when I shut up and ate it anyway. Those who do not pay for it, do not complain about it.  Then we tried to sleep and my sciatica woke up at 1 am and kept me up off and on all night. I think it was the flight that made my hip mad.


December 22nd

The Dallas World Aquarium was next on our places to visit while in Dallas.  The Aquarium was less than a block from the hotel.  This aquarium is a mix of zoo animals and aquarium.  They take you to the top of the aquarium building and you slowly walk a path down to the bottom of it.  The top is rainforest and ponds throughout it. As you walk through you see birds and animals up close.  We stopped to see the otters get fed in their pond enclosure. At the bottom are the aquariums filled with fish from all over the world.  There is shark tunnel you can walk through and sit to watch the fish.  There is a black jaguar in an exhibit.  He is gorgeous.  He was sitting next to the glass so people could see him up close. This aquarium is worth the money to go see.

We left Dallas and headed out to find lunch.  Lunch was a Sushi place that has revolving belts to bring you the food and you get to choose what you want.  I had my first hand roll of crab and shrimp.  Delicious.

Then it was on the road to Norman, Oklahoma.  I was thankful throughout the entire week for Maria and Alex’s cars having heated seats.  It was cold while I was there.  My thin California blood said Brrrrto their weather.  They dropped me off at my hotel- La Quinta Inn and Suites in Norman, OK.  This a nice place to stay.

I had a handicapped bathroom and it looked like something out of a sci fi scene.  I had two complaints. One is why is the handicapped room at the end of the hallway away from the elevator.  I was in room 328 almost at the end of the hallway.  Second, is the shower does not have enough power to it.  I like to have a shower that power washes me.  But then most hotels do not power wash guests in the shower.   The room was nice with a dresser and desk.  We moved the desk from sticking out in the room so I would not run into it like Maria did.  Then Maria brought over all the boxes of stuff I shipped to her for gifts and separated them into piles for families.  It took up a good part of the desk.  Then it was off to the restaurant- Jason’s Deli- for a dinner meal of a taco salad for me.  We walked over in snow flurries.  So the beginning of my time in Oklahoma had snow coming down.


December 23rd

Shopping/Dialysis day/ Ollie Time

Maria joined me for breakfast and we started the day by going to Big Lots for wrapping supplies and a dialysis blanket for me.  Then to Walgreens for a heating pad and something to help relieve the hip and leg pain I was having.  I put on a hot/cold pack and it helped so I could walk around not in so much pain.  Tylenol and Aleve helped relieve the pain, too.   Then I went off to dialysis and had my run with the usual blood pressure, however these people listened to me and were able to take fluid off me.  They were quite nice and on time.  Maria picked me up from dialysis and we went to Shelly’s house to see Rhona, Shelly and Ollie.  Ollie is a month old and is a cute bucket boy.  He is still learning about his feet and arms and is adorable.  I have been declared his another grandma: Granny.  I was grannyfied.  LOL.  Then we returned to Jason’s Deli for some dinner and I had Muffalotta sandwich.  An interesting conglomeration of olive mix and turkey.  It needed bacon and some sort of sauce with it.  I used Maria’s salad dressing to help it along.   We walked back to La Quinta and wrapped presents in the wrapping stuff we had bought earlier.

I was then off to relax and sleep.  The heating pad saw much use at night to help with pain.


24th Kaylee’s brunch/ Movie/ Shelly’s Ollie time

Maria picked me up and we went over to her Little Sister Kaylee’s house to do Christmas with her family.  We played Star Wars Monopoly, Space Race and Uno while we were there.

We left her house, went o pick up Alex and headed to the Warren theater to see the new Star Wars movie- The Last Jedi.  I had smothered tater tots and a diet dr pepper as my snack in the theater.  This place is pretty cool. We were up in the balcony and they will feed you there all kinds of food off their menu.  We spoiled our dinner that is for sure.  The movie was good.  I want to see it again to pick up parts I may have missed.  Off to see Rhonda and have tacos for dinner after the movie.  We did not eat much so she had tons of leftovers.  Next time she said to bring appetites.  I think we have to.

I sat with Ollie a little more and took a few pics.  Then back to my hotel and rest and relax for the evening.



December 25th Rhonda’s for Christmas

We went over to Rhonda Martin’s house for Christmas celebration.  Her daughter Jennifer and two adult girls and her younger son came over with their children, so a full house around the table, when we ate dinner.  Presents were passed out to everyone.  It was a good time.  Rhonda had ham, turkey, potatoes, gravy, stuffing and yams with marshmallows, plus what ever else was there.  We ate ourselves into a food coma.  Alex brought a Christmas log cake he had made for dessert.  Yummy sweet dessert.


December 26th Dialysis Day

Maria took me to a donut shop to meet her friends.  Monster donuts, they are not kidding about it. Not one of us finished their donuts. Then we went to the Noble Natural History Museum with her friend and her kids.  We had a good time with them looking at everything in the museum. The two children were good and had fun looking at things.  They also had fun pushing me around in a wheelchair.

Then we went to lunch at Carls Jr, my usual lunch place before dialysis.  Then to dialysis where I think they forgot I was coming.  I was on the machine about an hour late and was late coming off the machine.  They did not check in with me about my strange blood pressure either and I came off the machine heavy in fluid. I just took it and left.  They will not be seeing me for awhile so why growl at things they will not be able to help.



December 27th  Science Museum

Maria met me for breakfast at my hotel. It was 22* outside. Cold even for the Oklahomans. We went to the store the get picnic supplies for our lunch and head out to the Oklahoma Science Museum.  This museum is a child centered museum with all kinds of experiments and activities for the kids to do.  We set the kids loose with us and wandered the museum.  I used a wheelchair and was pushed around.  A few areas of the museum is hard to push through due to is being like grassy turf.  There is a treehouse for the kids to climb, theater area, things for them to put together and do, science experiments, a Segway area, a show about explosive and a planetarium; as well as game areas and etc.  We ate our lunch picnic in the museum table area with the girls.  Everyone shared what they brought and it was a pretty good meal for picnic supplies from little Walmart.  Thank you Maria  We did the explosives show and the Planetarium show.  I was falling asleep during the Planetarium due to lack of sleep because of my hip pain.

Maria took me to her house and I took a short nap on her chair and relaxed. We had fun playing with her dog Pi/ The other mom and girls popped in with pizza and we had dinner and dessert. After the girls and their Mom left, Maria took me back to my hotel.  I slowly gathered things together to pack in the morning.


December 28th  Pack it up, mail package, eye appts and airport.

I was up early at 5 am. I slowly packed my stuff up into a big suitcase and my carry on.  I took a shower at 7am so I was clean to go.  I finished packing and met Maria on my hotel floor ready to go with all my bags.  We then got out into the snow flurries.  Yes, as I am leaving it is snowing in Oklahoma.

We went shoe shopping at Brown’s and I picked up new Vionic tennis shoes.  Then we went to Best Buy and looked at laptop computers for me.  I ended up buying an HP pavilion x360.  I am so mad at Apple products I am no longer buying them.  Silly things made it difficult for my Apple laptop and Pixel 2 phone to sink google.  Silly people.  Best Buy was weird because we had to go hunt up someone to help us in the computer department. Usually customers are chum for them.


We went to wait for Alex to get home from work.  We played with the dog for awhile and Maria helped me set up the new computer.  We headed out to lunch at Red Robin’s.  Good food and great sauces were had by all.

This trip I tried a few sips of alcoholic drinks to see if I liked them.  At the restaurant Maria had a pretty strong Mojito I had a taste of. Something with Vodka in it the kids had in Dallas.  Then a few sips of beer with them at a few restaurants.  I do not do my own glass of whatever due to the meds I am on.  The stuff I tasted was pretty good.

Alex and Maria has eye appointment, so they dropped me back at their apartment and I relaxed and rested before my flight home.  Maria dropped me off airport around 6pm and I made my flight back to California via Dallas to Ontario on time.


My time with Maria and Alex is always fun.  Thank you very much.

2017-Holiday Letter from Katherine and Victor Soto

Holidays 2017- Happiness is wished to everyone for this season and for the New Year.

I find it hard to believe another year has slipped by and here we are back into December at the end of the year. We have had many things to look back and reflect on this year.

The biggest change has been being grandparents to a very busy toddler now.  Violet will be two years old in February 2018.  She is a happy little girl.  She hangs out willingly with just about anyone.  We have babysat her at least once while the kids have gone out for a concert and dinner.  It has been fun to see the changes in her month by month.  She seems to learn something new every time we see her.  I like being a Grandma and Victor enjoys playing Grandpa with her.  We have lots of pictures and a few videos of them together.  Precious memories.

We had our bathroom tub worked on in May. Funny how simple things will expand into major projects.  The tub faucet was dripping water and here in SO CA every drop counts.  We ended up with half a wall torn out, tiles taken out, a new tub faucet, and new shower head, with a wall redo to finish it off. I am sure our handyman liked to see the money he earned.

We made a big mistake this year and went from ATT U-verse to DirectV as our TV provider.  Nothing was installed properly and we had to have repairman out several times.  I was furious by the time we got reasonable service from them.  I am leaving them as soon as the two-year contract is up.  I much preferred ATT to the mess we have now.  I do NOT recommend them at all.

Of course there were regular medical office visits for both of us as ongoing issues continue to be ongoing. . Victor has modeled for a few classes working on prosthetic development with Loma Linda University.  I tease him to leave those clothes on, when he goes to model.  They pay the models a little gas money and the students get to work with real life patients.  He likes doing it.

I am still on dialysis for six hours three days a week. I am still am an admin for <ihatedialysis.com> an online forums and Facebook group of everything related to kidney disease.  It keeps me busy and out of trouble most days.  I took my annual trip to Las Vegas in October for the tenth annual reunion of <ihatedialysis.com.>  We had nine people at the dinner this year and enjoyed seeing the sites in Las Vegas.  This year it was Señor Frog’s Drag Show, Chippendales, and Menopause the Musical as our girls’ nights out.  A friend of mine and I also ate lunch at the Top of the World Restaurant in the Stratosphere. I am afraid of heights so to sit at a table right next to the windows was amazingly frightening for me for several minutes.  I calmed down and we had a superb lunch.  I love adventuring around Las Vegas with my crazy friends.  I also have a new blog: <lifenotonthelist.com>  It has glimpses into my life as a forever dialysis patient, and my worldviews.  I am posting some of my poetry and some of my thoughts from over the years.

I bought a brand new Toyota Corolla iM in Barcelona Metallica Red/Four door Hatchback with safety stuff galore. I traded in the 2012 two door Yaris for a four-door car due to needing room for the granddaughter when she visits us in the next years. It is a sporty looking Corolla.

We still have our crazy dog and cat.  We have been down to two pets for a few years now. I bought a new loveseat for my office area and they have taken it over.  I knew it would happen.

I have plans to be in Oklahoma for Christmas this year.  We will celebrate early here with family, especially the grand child and her parents, with plans to be at the Mills Family party on the 17th.

The saddest part of the year was when Aunt Nita, my Godmother, made her transition to spirit.  I was honored to share scripture at her service. It was great to see family from far away.  I miss her, but know she is carried in hearts all over the world.

So as 2017 comes to its end, I will turn 55, and the year will turn to 2018.  May the New Year bring you blessings from the Universe and bring you enough.

Katherine and Victor Soto

Rialto, CA

My December Birthday Celebrations

My birthday is on December 31st, so I tend to celebrate all month long.

Birthday #1

Thanks to my sister who took me to the Living Desert and pushed me around in an adult stroller.  I walked bits and pieces of it, too.  I even offered to push her up a few hills. My pictures are on Facebook.

We also went to Red Robin and I used my Red Robin Royalty Rewards for my meal. They give the birthday person an entire meal free. They pretty much let you order whatever you want on the birthday meal, so I ordered up two chicken breasts and extra bacon to a guacamole burger (no burger).  Then we had dessert and they brought me a birthday Sunday.  They have a new dessert-truffle dark chocolate bar thing with raspberry dipping sauce.  Holy cow!  Those were good!  I took most of them home and shared with Victor.  (It was a nice midnight or so snack.)  The meal was delicious and talking to my sister is always a good time.

December 7th

So the CSUSB Alumni Association sent me a birthday card with a cloth glasses holder in it. Funny thing I had to pay postage due on my free gift with the post office, so my free birthday card and gift from CSUSB cost me 2.02. I called them and thanked them for letting me pay for my own damn present. #CSUSB Alumni

December 16th

My Mom gave me  a bright red blanket for my birthday to use a a dialysis blanket.  May be a little light for use there but I can use it in my office.


December 30

Danielle and Dave came today and took me out to Miyagi’s for all you can eat sushi for my birthday.  I got to see Violet. She is so smart and growing every day.  What a grandchild I have.  They also brought me a microwave heater pack for my neck and back.  I love those things.  Victor and Marilyn came to lunch also.  It was a good time.

December 31- My Birthday

I had dialysis on my birthday from 11:15am to 5:15pm. I brought the celebration there with cupcakes to share with everyone.  We took in 48 cupcakes and brought a dozen home.

Victor took me to a birthday dinner at Black Angus where we ate ourselves into a stupor on their feast for two people.  Victor also brought me two new small boxes for a gift.  One box has electronics in it, the other is sitting in the collection.  He also gave me two cards and one had a check in it.  He finds the best butt cards for me.

My friend Marilyn gave me a large box for my collection and it had chocolate goodies in it.

Happy Birthday!  55 and still alive!



A Life time of Surgeries

Maybe you all wondered about the background I have in medical issues.  Here is some of it.

1966- YB Plasti Surgery on bladder neck Ureters replanted into bladder to prevent reflux into kidneys. Unsuccessful

1972 YB Plasti Surgery again. Unsuccessful

1972 Strabismus surgery- eyes

1973 Strabismus surgery-eyes

1974 Urostomy surgery

1978 Tonsillectomy

1985 Cesarean- Daughter born

1987 Cesarean- daughter born

1999-2017 Multiple graft and fistula surgeries for dialysis. I have lost track of these procedures.

2006 Parathyroidectomy

2013 Intestinal perforation with ileostomy

2014- Ileostomy reversal surgery